Strategi daya tindak dan program sokongan sosial untuk penjaga tidak formal
List of Authors
  • Hilwa Abdullah , Nur Saadah, M.A.

Keyword
  • strategi daya tindak, penjaga tidak formal, pesakit kronik, program sokongan sosial

Abstract
  • Penjagaan tidak formal terhadap golongan yang berpenyakit kronik memberi tekanan kepada penjaga. Tekanan ini boleh diatasi dengan pelbagai bentuk strategi daya tindak. Oleh yang demikian, kajian telah dijalankan bertujuan bagi mengenal pasti strategi daya tindak yang dipraktikkan oleh mereka bagi mengatasi tekanan. Kajian kualitatif yang menggunakan tradisi kajian kes telah dijalankan dalam kalangan penjaga tidak formal yang menjaga anggota keluarga yang berpenyakit kronik. Sejumlah 15 orang penjaga tidak formal di sekitar Kuala Lumpur dan Selangor telah ditemu bual dengan menggunakan teknik temu bual mendalam. Hasil kajian mendapati, terdapat empat jenis strategi daya tindak yang dipraktikkan oleh penjaga tidak formal iaitu strategi daya tindak sokongan sosial (15 orang), strategi daya tindak kawalan-diri (seorang), strategi daya tindak penerimaan tanggungjawab (lima orang) dan strategi daya tindak penilaian semula positif (tiga orang). Hasil kajian juga mendapati, para penjaga tidak formal dalam kajian ini memerlukan satu sistem sokongan sosial yang eksklusif untuk mereka dan individu sakit yang dijaga mereka. Pelan cadangan sistem sokongan sosial untuk penjaga tidak formal ini adalah sebuah intervensi sosial yang mengandungi program sokongan sosial yang mampu membantu penjaga tidak formal mengurangkan tekanan yang dialami secara lebih teratur.

Reference
  • 1. Aspinwall, L. G., & Taylor, S. E. (1997). A stitch in time: self-regulation and proactive coping. Psychological Bulletin, 121(3), 417-436.
    2. Ben-Zur, H., & Michael, K. (2007). Burnout, social support and coping at work among social workers, psychologists and nurses: the role of challenge/control appraisals. Social Work in Health Care , 45(4), 63-82.
    3. Berg, B., & Hassink, W. H. J. (2008). Cash benefits in long-term home care. Health Policy, 88, 209-221.
    4. Carver, C. S., Scheier, M. F., & Weintraub, J. K. (1989). Assessing coping strategies: a theoretically based approach. Journal of Personality and Social Psychology, 56(2), 267-283.
    5. Chang, E. C., Tugade, M. M., & Asakawa, K. (2006). Stress and coping among asian americans: lazarus and folkman's model and beyond. In P. T. Wong, & L. C. Wong (Eds.), Handbook of multicultural perspectives on stress and coping (pp. 439-455). USA: Springer.
    6. Da Roit, B., & Le Bihan, B. (2010). Similar and yet so different: cash-for-care in six european countries’ long-term care policies. The Milbank Quarterly, 88(3), 286- 309).
    7. Fatimah Abdullah, Saim, N. J., Nur Saadah, M. A., & Mohamad, M. S. (2008). Penjagaan Tidak Formal dan Penjagaan Dalam Komuniti di Malaysia. (Tidak diterbitkan).
    8. Folkman, S., & Maskowitz, J. T. (2004). Coping: pitfalls and promise. Annual Review of Psychology, 55, 745-774.
    9. Freund, P. E. S., & McGuire, M. B. (1991). Health, illness and the social body: a critical sociology. New Jersey, Prentice Hall.
    10. Hamama, R., Ronen, T., & Feigin, R. (2000). Self-control, anxiety and loneliness in siblings of children with cancer. Social Work in Health Care, 31(1), 63-83.
    11. Kementerian Pembangunan Wanita, Keluarga dan Masyarakat. (2008). Laporan Tahunan Jabatan Kebajikan Masyarakat. Kuala Lumpur.
    12. Kerr, S. M., & Smith, L. N. (2001). Stroke: an explanation of the experience of informal caregiving. Clinical Rehabilitation, 15, 428-436.
    13. Lazarus, R. S., & Folkman, S. (1984). Stress, Appraisal and Coping. New York: Springer.
    14. Lowit, A., & Teijlingen, E. R. (2005). Avoidance as a strategy of (not) coping: qualitative interviews with carers of huntington's disease patients. BMC Family Practice, 6(38), 1-9.
    15. Malecki, C. K., & Demaray, M. K. (2003). What types of support do they need? investigating student adjustment as related to emotional, informational, appraisal and instrumental support. School Psychology Quarterly, 18(3): 231-252.
    16. Morris, S., & Thomas, C. (2002). The need to know: informal carers and information. European Journal of Cancer Care, 11, 183-187.
    17. Nijboer, C., Tempelaar, R., Triemstra, M., Bos, G. A., & Sanderman, R. (2001). The role of social and psychologic resources in caregiving of cancer patients. American Cancer Society , 91(5), 1029-1039.
    18. Pierson, J., & Thomas, M. (2002). Collins dictionary of social work. Glasgow: Harper Collins Publishers.
    19. Ritchie, J. & Lewis, J. (2003). Qualitative research practice: a guide for social science students and researchers. London: Sage Publications.
    20. Rodehaver, C. L. (2008). A Study of family primary caregivers for adults with a severe mental illness. Thesis, California State University, California.
    21. Sander, A. M., Davis, L. C., Struchen, M. A., Atchison, T., Sherer, M., Malec, J. F., et al. (2007). Relationship of race/ethnicity to caregivers' coping, appraisals, and distress after traumatic brain injury. NeuroRehabilitation, 22, 9-17.
    22. Savundranayagam, M. Y., Montgomery, R. J. V., & Kosloski, K. (2011). Impact of a psychoeducational program on three types of caregiver burden among spouses. International Journal of Geriatric Psychiatry, 26, 388-396.
    23. Silverman, D. (2010). Doing qualitative research (3rd ed.). London: Sage Publications.
    24. Simon-Rusinowitz, L., Mahoney, K. J. Desmond, S. M., Shoop, D. M., Squillace, M. R., & Fay, R. A. (1997). Determinig consumer preferences for a cash option: arkansas survey results. Health Care Financing Review, 19(2), 73-96.
    25. Teater, B. (2010). An introduction to applying social work theories and methods. United Kingdom: Open University Press.
    26. Twigg, J. (1989). Models of carers: how do social care agencies conceptualise their relationship with informal carers?. Journal of Social Policy, 18(1), 53-66.
    27. Wills, T. A. (1985). Supportive functions of interpersonal relationships. In S. Cohen, & S. L. Syme (Eds.), Social support and health (pp. 61-82). Orlondo: Academic Press.
    28. Won, C. W., Fitts, S. S., Favaro, S., Olsen, P., & Phelan, E. A. (2008). Community-based ‘powerful tools’ intervention enhances health of caregivers. Archives of Gerontology and Geriatrics, 46, 89–100.
    29. Yamada, M., Hagihara, A., & Nobutomo, K. (2008). Coping strategies, care manager support and mental health outcome among japanese family caregivers. Health and Social Care in the Community, 16(4), 400-409.
    30. Zakowski, S. G., Halls, M. H., Klein, L. C., & Baum, A. (2001). Appraised control, coping and stress in a community sample: a test of the goodness-of-fit- hypotheses. The Society of Behavioral Medicine, 23(3), 158-165.